I've been meaning to post on this subject for a while now. *Deep breath...preparing to ramble*

I, like so many others in the world, thought Lyme Disease was no big deal. You get bit by a tick; you get a bull's eye rash; 30 days of doxycycline and you're all better! Well, I was wrong.

For the past couple of years, I've struggled with seemingly unrelated health problems: hives, on again/off again abdominal pain, joint pain, fatigue, sudden dizzy spells, ect. It wasn't until this summer, after having my 5th or 6th shingles outbreak, that I began to suspect Lyme's. I figured something must be suppressing my immune system for me to have so many outbreaks(the Doc shrugged it off as "stress" ). My search results kept bringing me back to Lyme's disease.

"No biggie", I thought, just get tested and take the antibiotics and all will be well. Well, I'm here to tell you, it ain't that easy!

Even the best test for Lyme's is around 40% accurate. Only around 50% of people who get Lyme's have the tell-tale rash to alert them. Doctors in my state refuse to believe Lyme's is an epidemic thanks to the CDC. Patients are often told that "it's all in their head". I know a young woman with Lyme's who was admitted to the ER at Emory due to serious neurological complications from the Lyme's. She had paperwork from her Doctor showing that she was positive for Lyme's and co-infections; The ER docs told her that she didn't have Lyme's because it doesn't exist in Georgia.

In order to get accurately diagnosed and treated for Lyme's, you have to see an LLMD(Lyme Literate Doctor). You can't just use Google to find one either. Nope, they are all on the "downlow". Why? Because they are being stripped of their licenses for treating Lyme's patients. They cannot advertise their services. You have to sign up on a forum and request that someone private message you with a name for the closest LLMD.

I haven't even been able to see a doctor yet because the closest LLMD is in another state and costs $475 just to see him. I'm looking at $1000 just to get a fucking diagnosis and that is not including travel expense. This is fucking bullshit. If I were worried that I had AIDS; I could go to a health clinic and get tested for little to nothing.

All of this bullshit just because there is a "political climate" surrounding a fucking disease! Some conspiracies may just be "theories" but this- this is a real fucking conspiracy!!! It has to be!

I can't say what the government is hiding regarding Lyme's but "they" are hiding something. Were they really experimenting with it on Plum Island? Was it really going to be used for biological warfare? Personally, I don't think it would be a great disease for warfare because it works too slowly. So, what? What's the fucking deal?

Something I found very disturbing in an article with Dr. Dietrich Klinghardt, MD, PhD I read on Dr. Mercola's website:

Lyme disease has recently received a new definition. It now refers to illnesses transferred by insects, as opposed to simply a tick-borne disease. Mosquitoes can carry Lyme disease and many other serious infections, as can spiders, fleas and mites.

"Today I take a very different approach to Lyme disease," Dr. Klinghardt says. "I look at it as nature mingling with our genes. They are trying to incorporate their genome into our genome… Most of the time it goes wrong but sometimes it goes well. This is like the point I want to make upfront; that I take this more evolutionary view of it.

… We know that Lyme spirochetes were around for a long time but something happened maybe 30-40 years ago, where the creatures became more aggressive, more penetrating, and more illness-producing than they were before. Some of us suspect it's a man-made element. Some of us suspect that the global warming may play a role in it.

I personally suspect that the exposure to electromagnetic fields in the home and the microwaves from cell phone radiation are driving the virulence of many of the microbes that are naturally in us, and makes them aggressive and illness producing. There is probably evidence for all sides of the discussion."

What this doctor had to say regarding the "evolutionary" part of these spirochetes trying to mesh with are genome is truly bizarre. Reminds me of something from Fringe. In fact, it reminds me of a character from Fringe named Charlie who(in an alternate universe) was infected by some arachnids that he had to take medication for to keep under control. i.chzbgr.com/maxW500/7019557376/hF1BDDF45/
This is kinda like Lyme's because the general consensus is that all you can do is manage the infection; as of now there is no cure.

I can't help but wonder what the government is hiding. If they are responsible for the Lyme epidemic we are seeing today, what was the purpose? What were they trying to accomplish? Depopulation- a very, very slow method of depopulation? Experimenting with evolutionary changes? Why? It just doesn't make sense.

Lyme's is a very serious disease. It mimics 300 other diseases and is often misdiagnosed. Lyme can cause not only debilitating pain but it can also cause a range of psychological problems; from sudden mood swings and violent behavior to visual and auditory hallucinations.

Anyway, I'm done with my rant.

hey did you already do antibiotics, or just cant get them because they wont prescribe?

batou wrote:
No, I haven't done the antibiotics because, even if a reg doc prescribed them, they only give you 30 days worth which is not sufficient. Also, I've read that some docs think doxy doesn't work that well anyway. It's a rough antibiotic, too. I had it once years ago and I couldn't take it because it made me so sick.

I've been taking Samento but am taking a break from it for a month. Then I'll start back up again for 8 weeks and do a Western Blot from Igenex(the best test available). I've been bitten hundreds of times by ticks over the past few years so I'm pretty sure it's Lyme's but I want a diagnosis otherwise I'll be "what if"ing all the time.

It's crazy how many people are probably walking around asymptomatic...not knowing until the symptoms are present. Fucking bullshit, I tell ya.

hey maybe you can buy some stuff .. i mean, online theres a lot of places. india.. mexico. there was a thread here about that, but i dont remember reading it tbh, check it out though. i dont want you to take some medicine you don't need and suffer ill effects but you dont have to be at mercy of the doctors giving you the run around and bleeding $$ off you.

I hate ticks :/
Bloody horrible creatures, once you've had to pull one off your nad sack then you'll know

I'm amazed at the silence over lyme disease too, much research is going to be needed perhaps and its its giving you shingles regularly (which I know is bloody painful) then you might consider moving somewhere with national healthcare somehow.

www.guardian.co.uk/commentisfree/2007/au...ndlymediseasewhatsth

^Even the president got it and theres secrecy surrounding it there too.
The more you look the more bizarre it gets, I remember looking at it a couple of years ago and being just as dumbfounded by it then.

ticks are fucking nasty you're right andy. like 2D spiders. prevention is better than the cure. pants, boots, hat, and bug spray.
bug spray seems like something bad... you know, DDT and all that shit. DEET now.. i dunno though, fuck ticks. i rather spray myself with a poison than get ticks. it seems to work, so im happy. 20 years time maybe i grow a back tentacle, at least i didnt have ticks nesting on my taint.

batou wrote:
I know I've read posts from some of the Lymies (who have to have intravenous antibiotics) buying online for better prices. If I have to go that route then I'll be buying online because it's expensive as fuck! Even herbals are expensive when you need so many different ones(and are broke like me).

For now, I'm going to try the natural route. Eventually, I'd like to get a rife machine as I've heard of people getting good results with those. It's all kind of scary because some people do everything and are still in really bad shape. Since it effects everyone differently, there is no one treatment that works for all Lymies. This has been one of the single most frustrating ordeals I've ever experienced. And no one believes you are sick or in pain because you don't "look" it.

andyh wrote:
Yeah, apparently there are many people who get shingles because of it. Since it weakens the immune system, it can cause flare ups and problems with other viruses(Hep C, too, I hear).

Reading stories from others on a support forum, I found that they are starting to suspect that (in the South/US) hives are more common than the bull's eye rash, too. If I was infected when I think I may have been infected then that makes since because I broke out in hives all over. Never happened before in my life!

batou wrote:
Ticks are the worst! Even before the whole "Lyme's issue", they were the bane of my existence! And they do love the crotch area! Fuckers! My friend, who has a rather extreme but creative approach to conspiracies, calls them "Chinese pussy cameras" since they are always all around the panty line!

The worst is getting into a mess of seed ticks! At first you think you are looking at specks of dirt or freckles until you notice they are moving....and there are hundreds!!!!

This is the first year in five years that I haven't had a tick or tick bite on me daily. The only reason for that is because I've been too sick or fatigued to be wandering the woods. That's the kind of thing I live for! Little bastards ruin everything!

K-Bone wrote:
They're picky bastards alright. Pants are no use cos they just creep up your leg until they're happy with the warmest spot.
And then they bite and latch on like all hell and the only way to get them off is with a special tool for the job.
I used to live in a part of ireland that was infested with the bastards, they have a disgusting lifecycle...utterly disgusting.

I feel ya, andyh! Those fuckers are determined! My dad recently had one embedded so deep, my mom had to dig it out! That's no good!

A female client of a hair dresser I know actually had one inside her vagina! Fuck! It doesn't get much worse than that.

Also, just so folks know- do not try "burning" them off! And no twisting and pulling! Get some tweezers and pull them straight out!

K-Bone wrote:
Depends if they leave their teeth behind, it can get infected.

I use a tool which you twist around and then pull up it takes them out with the teeth too.
Its like a ballpoint pen but with a wire lasoo tip which retracts tight around the head when you click the ballpoint tip so to speak, you then twist counter clockwise and lift.

andyh wrote:
Interesting...I'll have to look into that tool. I'm guilty of improper removal because I'd usually freak out and yank em off with my fingers whenever I'd see 'em attached. If I'm not mistaken, the "burning by match" method can increase the chance of them passing the bacteria into your blood stream. But, I can't remember where I read that.

Here's a video of the spirochetes "balling up". This is one of the reasons they are so hard to treat; they form cysts as a defense(they also have a protective biofilm).

They drill into tissue and bone(assholes ):

www.amazon.com/Trix-Ticklasso/dp/B001FMG...id=1359582386&sr=8-1

K-Bone wrote:
Truly bloody scary :/

andyh wrote:
Thanks! Just added 2 to my cart(one for my Dad)!

Its only people who have experienced them who understand them well tbh.
A lot of people often ask me 'don't you feel it crawling on your skin?' etc.
The reality is you often don't notice them at all, even for prolonged periods until they're a huge bag of blood ewww :/

andyh wrote:
Oh- that is the worst! Ewww, indeed! I can't stand to look at them when they are full of blood!

And, yeah, I can't tell you how many times I've found one the next morning, clinging to me. It's so creepy knowing it's been there all night feasting!

Ugh, and the itty bitty seed ticks....one summer, I noticed bites on my legs in the morning but didn't see anything. Got to work, was going about my day...went to the bathroom and as I'm sitting on the toilet, I notice a moving "freckle"!
so, it was freak out time and I had to strip in the bathroom and frantically try to de-tick myself!

Later, that night, I found the little bastards on my sheets. I guess I must have sat on my bed to take off my boots after walking the dog. I have so many horror stories about ticks...it's been a nightmare!